The Interstitial Cystitis Network is a woman owned,“social advocacy” health education company dedicated to interstitial cystitis, overactive bladder and other pelvic pain disorders. Using the internet, we create innovative solutions to the pressing problems facing patients diagnosed with urologic conditions, medical care providers who care for them and the research community seeking new treatments and cures. For the past 25 years, we have provided critical 24/7 support to patients in need, developed new educational materials, conducted vital research, provided webinars/lectures and created IC awareness campaigns, all at NO COST to the patients who visit our website.
Based in California, we believe that IC patients have much to give the world, as well as talent and experience to share. We encourage and nurture entrepreneurship for those who may have lost their jobs and/or health insurance. We employ only IC and pelvic pain patients in our offices and/or as subcontractors. We value social responsibility and adapt, whenever possible, green business practices. We encourage, for example, the delivery of our magazine via email to reduce paper consumption and reduce the end user subscription costs.
Led by IC patient and activist Jill Heidi Osborne, the ICN received the highest score and recommendation from researchers at the University of London (2013) who conducted a review of the accuracy, credibility, readability of IC/BPS websites, outpacing all other non-profit and government websites. In 2011, a similar study conducted by Harvard Medical School rated Medscape and the IC Network the two highest quality websites dedicated to IC. We’ve received the Wellsphere Health Award, the Netwellness Consumer Health Information Award, a coveted five star review from ObGyn.net, a four star review from Mentalhealth.net and others. We prove, on a daily basis, that disabled patients have much to give the IC community and the world at large.
The ICN offers live IC/BPS/PFD support group meetings held twice a month and simulcast through our Facebook and YouTube pages. Led by Jill Osborne, the longest serving IC support group leader in the USA, she will take your questions about IC, share new information, review IC subtypes, explore treatment options, self-help tips and much more! Each meeting lasts about two hours!
Sundays Of the Month starting between 12:30PM and 1PM. Please note that it may take a few extra minutes to get the video feeds working so please be patient! Jill also does meetings during the middle of the week on random days and times to accommodate patient schedules, as well as our international viewers. To be notified of those, just Like our FB or follow our YouTube channel and you will be notified when they start.
It is simulcast through our Facebook Page and our YouTube Channel. ZOOM meetings may also be started during the meeting for meetings.
ICN Face Page – https://www.facebook.com/interstitialcystitisnetwork?fref=ts
ICN YouTube Channel – https://www.youtube.com/icnjill/
The IC Optimist is the quarterly magazine of the IC Network and available to all members! Learn more about memberships here!